NY, UNITED STATES, October 17, 2024 / EINPresswire.com / -- For 70 years, Cooley’s Anemia Foundation (CAF) has been working tirelessly to help patients with thalassemia live longer, fuller lives ...

While I look completely healthy on the outside, I was born with Cooley’s anemia, less commonly known as beta thalassemia major. It’s a rare genetic blood disorder that is only thought to ...

Established in 1954, Cooley's Anemia Foundation has been a pillar of support for those affected with thalassemia, a genetic blood disorder affecting both children and adults in which patients ...

Thalassemia is sometimes known as "Cooley's anemia," named after DMC physician Thomas Cooley who discovered the disorder in 1925.

Cooley’s anemia is a genetic blood disorder that renders red blood cells defective, resulting in severe anemia. The only way to sustain life is a life-long combination of biweekly blood ...

Patients with beta-thalassemia major (also known as Cooley's anemia) have a reduction or absence of beta protein in their hemoglobin, resulting in severe anemia, which requires regular blood ...

Daniela will have Cooley anemia for the rest of her life. The disease is genetically inherited and makes it hard for the body to create healthy red blood cells.

To sign up for the the Cavaliere/Cooley’s Anemia Foundation Blood Drive, at the Staten Island Donor Center, 2791 Richmond Ave., visit the New York Blood Center website or call (800) 933-2566.

Cooley's Anemia Foundation spent $80,000 lobbying in 2015. See the issues it lobbied.