When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes.

Dear Speaker Johnson, Chair Aderholt, Leader Jeffries and Ranking Member DeLauro, We, the undersigned organizations, write to express our deep concern for our nation’s biomedical research institutions ...

On behalf of millions of patients and consumers we represent across the United States who face serious and chronic health conditions, our organizations urge Congress to oppose cuts that will terminate ...

Today 40 non-profit, non-partisan organizations issued a statement in advance of the House Energy and Commerce and Ways and Means Committee markups asking them to stop assaults on healthcare that will ...

Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease. 12 min read What Is Cystic Fibrosis? Cystic ...

Undergoing two double-lung transplants before the age of 22 was never something I thought I would face. But through the ups and downs, I found motivation in giving back to my community. I never ...

Half of all children with cystic fibrosis and a third of all adults with CF rely on Medicaid to afford the treatments and care they need to live a healthy life. Some proposed policy changes have the ...

Dear Chair Cavanagh and Members of the Committee on Finance, Insurance, and Consumer Protection: On behalf of the people living with cystic fibrosis in Michigan, the Cystic Fibrosis Foundation writes ...

Dear Chair Nosse and Members of the Committee on Behavioral Health and Health Care: On behalf of the nearly 470 people living with cystic fibrosis in Oregon, the Cystic Fibrosis Foundation writes to ...

Dear Chairman Feeney, Chairman Murphy, and Members of the Joint Committee on Financial Services: On behalf of the more than 830 people living with cystic fibrosis in Massachusetts, we write to express ...

My son’s cystic fibrosis diagnosis blindsided me after negative prenatal screening. More effective genetic testing would have given my family the chance to prepare.