News

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes.
The Cystic Fibrosis Foundation is proud to announce that it has surpassed its goal for the Milestones III: Driven by a Dream major giving campaign, raising more than $200 million to support its ...
I started my stride against CF in 1996. My closest cousin, Danny, and I were the same age — we liked the same things, went to the same school, and experienced life side by side. But he was dealt a ...
My son’s cystic fibrosis diagnosis blindsided me after negative prenatal screening. More effective genetic testing would have given my family the chance to prepare.
A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...
The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to people with cystic fibrosis ages 2 and ...
Have you ever wondered if there was something else going on with you? Something else affecting you that you were not aware of? Well, I felt that way. Ever since I was young, I have always struggled ...
The Foundation and Bakar Labs will support Positivo Biotechnology as it pursues novel genetic therapy delivery technologies for people with cystic fibrosis. The Cystic Fibrosis Foundation and ...
My son, Anthony, is in the fourth grade and learns daily about how important scheduling is with cystic fibrosis. After his tune-up last summer, I have noticed his maturity and growth this past year.
I fall into the latter group. I have two rare mutations that cause a coding error in my DNA. Because of this error, I can’t produce CFTR protein, so modulators will ...